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back home posted by sophie @ 11/19/2005 8:19pm
thankfully, dea's hospital stay was a short one. we are back home now. he has a new pump now that continuously delivers dilaudid (for pain). monday he should have another parecentesis to drain more fluid, and tuesday is our next appointment for chemo.

the latest cat scan showed fluid in his stomach all the way up to his esophagus. any higher, and he would be at serious risk for pneumonia. it didnt show any difference in tumor size, which is great.

however, dealing with our gi doctors has gotten even more frustrating. it may be time for a switch. actually, it may be past time for a switch. it would be wonderful to have a gi doctor willing to fight at least half as hard as dea is willing to.

going back to bergan made me like the place even less. the doctors and nurses are wonderful. the hospital rooms arent. i wish they spend a fraction of what they spent on the new lobby on upgrading the hospital rooms. when we asked about being able to watch movies in the hospital room, the nurse offered a vcr. i'd like to see anyone try and rent a new release on vcr. i bet it isnt easy. plus, to get internet, we have to use dialup and tie up the phone line. this basically leaves just cable tv as the only source of distraction while in there. when you are in bed 24/7 at the hospital, just being able to watch movies and surf the web can help pass time so much easier. especially now, when dea is starting to really feel left out at work. he is trying so hard to get better and stronger so he can go back, but when he can't even check his email while in the hospital... well... what can you do?

the hardest part is that lakeside is about 5-10 minutes away from our house. i'm told they have free wireless internet in the rooms. i'm told that you can rent movies and watch them from your room. i'm told the food is good enough to eat at least 50% of it... versus the 10% of the guest trays i eat when at bergan. but... the team of people that look over my dad at bergan is indispensable. they are wonderful, and really care. in the end... physical health > mental health i guess. i just dont think you should have to choose between the two.



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