this tuesday he'll be having a procedure called paracentesis to drain some of the excess fluids in his stomach region. its a very minor surgery, and should help him be a bit more comfortable.

the big issue is still weight. since he came home, he as averaged only 1260 calories a day. (he needs about 2300 calories daily.) dealing with our gi doctors has been frustrating at best. we are pushing very hard to get him back on a tpn or ppn so he can get nutrients through his port while we continue to struggle with tube feeding.

dannie also had a wonderful opportunity to visit a conference on pancreatic cancer in los angeles. hopefully she comes back with lots of great information!