our biggest obstacle at the moment is getting him to gain weight. we have a couple doctors visits and phone calls this week to see if he can start eating soft foods soon. until then, he is connected to at least one of his pumps most of the day and all throughout the night. (he only gets a 6 hour break on good days...)

i dont think he is going to be up for visitors until he gets a little bit more mobility. being connected to his pumps is somewhat awkward. i'll keep asking him though!